From: Barb Kohler
To: Lee Perry,
Subject: Please let the body hear HB 105. Pass HB 105 out of Rules.
Date: Mon Feb 10 21:07:37 MST 2014
Body:
Representative Perry, 

I am writing to ask for your support in voting in favor of HB 105: Plant Extract Amendments. Please pass HB 105 out of Rules. 

Our 10 year old son, Peyton, has a severe form of epilepsy called Dravet Syndrome.  Despite all of our best efforts and numerous medications and treatments tried, he continues to have seizures on almost a daily basis. In the months of December and January he had over 100 grand mal seizures per month. Often times these come in clusters and we are forced to give him strong rescue medications in an attempt to stop the seizing. Along with the seizures he has experienced serious regression in all areas: motor skills, speech, academics, and social.  

After much research and hours of time spent studying this product, we are certain that Alepsia has the strong potential to help Peyton where other medications and treatments have failed.  It is heartbreaking to watch our child continue to suffer. Please help us and many other families in Utah by voting for HB 105 in this legislative session. Further information and research about this medication, along with stories of children who can be helped here in Utah, can be found on hope4childrenwithepilepsy.com. I would also be happy to answer any questions you have as well. 



Sincerely,
Barbara Kohler
3261 North 425 West
Lehi, Utah 84043
801-319-5525