1     
DOWN SYNDROME NONDISCRIMINATION ABORTION ACT

2     
2019 GENERAL SESSION

3     
STATE OF UTAH

4     
Chief Sponsor: Karianne Lisonbee

5     
Senate Sponsor: Curtis S. Bramble

6     

7     LONG TITLE
8     General Description:
9          This bill concerns an unborn child with Down syndrome.
10     Highlighted Provisions:
11          This bill:
12          ▸     defines "Down syndrome";
13          ▸     requires the Department of Health to create a Down syndrome informational
14     support sheet and publish the same information on the department's website;
15          ▸     requires that a pregnant woman be provided certain information before receiving an
16     abortion when a prenatal screening or diagnostic test indicates that the pregnant
17     woman's unborn child has or may have Down syndrome;
18          ▸     after expressly permitted by a court of binding authority, prohibits a person from
19     performing, inducing, or attempting to perform or induce an abortion on a pregnant
20     woman who is seeking the abortion solely because an unborn child has or may have
21     Down syndrome;
22          ▸     requires an abortion pathology report to provide information about whether an
23     aborted child had or may have had Down syndrome;
24          ▸     requires a physician who performed an abortion to state whether the physician had
25     any knowledge that the pregnant woman sought the abortion solely because the
26     unborn child had or may have had Down syndrome; and
27          ▸     makes technical changes.
28     Money Appropriated in this Bill:
29          None

30     Other Special Clauses:
31          This bill provides a special effective date.
32     Utah Code Sections Affected:
33     AMENDS:
34          26-10-1, as last amended by Laws of Utah 2011, Chapters 147, 366 and last amended
35     by Coordination Clause, Laws of Utah 2011, Chapter 366
36          63I-2-276, as last amended by Laws of Utah 2018, Chapter 38
37          76-7-301, as last amended by Laws of Utah 2018, Chapter 282
38          76-7-305, as last amended by Laws of Utah 2018, Chapter 282
39          76-7-309, as enacted by Laws of Utah 1974, Chapter 33
40          76-7-313, as last amended by Laws of Utah 2018, Chapter 282
41     ENACTS:
42          26-10-14, Utah Code Annotated 1953
43          76-7-302.4, Utah Code Annotated 1953
44     

45     Be it enacted by the Legislature of the state of Utah:
46          Section 1. Section 26-10-1 is amended to read:
47          26-10-1. Definitions.
48          As used in this chapter:
49          (1) "Down syndrome" means a genetic condition associated with an extra chromosome
50     21, in whole or in part, or an effective trisomy for chromosome 21.
51          [(1)] (2) "Maternal and child health services" means:
52          (a) the provision of educational, preventative, diagnostic, and treatment services,
53     including medical care, hospitalization, and other institutional care and aftercare, appliances,
54     and facilitating services directed toward reducing infant mortality and improving the health of
55     mothers and children provided, however, that nothing in this Subsection [(1)] (2) shall be
56     construed to allow any agency of the state to interfere with the rights of the parent of an
57     unmarried minor in decisions about the providing of health information or services;

58          (b) the development, strengthening, and improvement of standards and techniques
59     relating to the services and care;
60          (c) the training of personnel engaged in the provision, development, strengthening, or
61     improvement of the services and care; and
62          (d) necessary administrative services connected with Subsections [(1)] (2)(a), (b), and
63     (c).
64          [(2)] (3) "Minor" means a person under the age of 18.
65          [(3)] (4) "Services to children with disabilities" means:
66          (a) the early location of children with a disability, provided that any program of
67     prenatal diagnosis for the purpose of detecting the possible disease or disabilities of an unborn
68     child will not be used for screening, but rather will be utilized only when there are medical or
69     genetic indications that warrant diagnosis;
70          (b) the provision for children described in Subsection [(3)] (4)(a), of preventive,
71     diagnosis, and treatment services, including medical care, hospitalization, and other
72     institutional care and aftercare, appliances, and facilitating services directed toward the
73     diagnosis of the condition of those children or toward the restoration of the children to
74     maximum physical and mental health;
75          (c) the development, strengthening, and improvement of standards and techniques
76     relating to services and care described in this Subsection [(3)] (4);
77          (d) the training of personnel engaged in the provision, development, strengthening, or
78     improvement of services and care described in this Subsection [(3)] (4); and
79          (e) necessary administrative services connected with Subsections [(3)] (4)(a), (b), and
80     (c).
81          Section 2. Section 26-10-14 is enacted to read:
82          26-10-14. Down syndrome diagnosis -- Information and support.
83          (1) The department shall provide contact information for state and national Down
84     syndrome organizations that are nonprofit and that provide information and support services
85     for parents, including first-call programs and information hotlines specific to Down syndrome,

86     resource centers or clearinghouses, and other education and support programs for Down
87     syndrome.
88          (2) The department shall:
89          (a) post the information described in Subsection (1) on the department's website; and
90          (b) create an informational support sheet with the information described in Subsection
91     (1) and the web address described in Subsection (2)(a).
92          (3) A Down syndrome organization may request that the department include the
93     organization's informational material and contact information on the website. The department
94     may add the information to the website, if the information meets the description under
95     Subsection (1).
96          (4) Upon request, the department shall provide a health care facility or health care
97     provider a copy of the informational support sheet described in Subsection (2)(b) to give to a
98     pregnant woman after the result of a prenatal screening or diagnostic test indicates the unborn
99     child has or may have Down syndrome.
100          Section 3. Section 63I-2-276 is amended to read:
101          63I-2-276. Repeal dates -- Title 76.
102          (1) If Section 76-7-302.4 is not in effect before January 1, 2029, Section 76-7-302.4 is
103     repealed January 1, 2029.
104          (2) Section 76-7-305.7 is repealed January 1, 2023.
105          Section 4. Section 76-7-301 is amended to read:
106          76-7-301. Definitions.
107          As used in this part:
108          (1) (a) "Abortion" means:
109          (i) the intentional termination or attempted termination of human pregnancy after
110     implantation of a fertilized ovum through a medical procedure carried out by a physician or
111     through a substance used under the direction of a physician;
112          (ii) the intentional killing or attempted killing of a live unborn child through a medical
113     procedure carried out by a physician or through a substance used under the direction of a

114     physician; or
115          (iii) the intentional causing or attempted causing of a miscarriage through a medical
116     procedure carried out by a physician or through a substance used under the direction of a
117     physician.
118          (b) "Abortion" does not include:
119          (i) removal of a dead unborn child;
120          (ii) removal of an ectopic pregnancy; or
121          (iii) the killing or attempted killing of an unborn child without the consent of the
122     pregnant woman, unless:
123          (A) the killing or attempted killing is done through a medical procedure carried out by
124     a physician or through a substance used under the direction of a physician; and
125          (B) the physician is unable to obtain the consent due to a medical emergency.
126          (2) "Abortion clinic" means the same as that term is defined in Section 26-21-2.
127          (3) "Abuse" means the same as that term is defined in Section 78A-6-105.
128          (4) "Department" means the Department of Health.
129          (5) "Down syndrome" means a genetic condition associated with an extra chromosome
130     21, in whole or in part, or an effective trisomy for chromosome 21.
131          [(5)] (6) "Hospital" means:
132          (a) a general hospital licensed by the department according to Title 26, Chapter 21,
133     Health Care Facility Licensing and Inspection Act; and
134          (b) a clinic or other medical facility to the extent that such clinic or other medical
135     facility is certified by the department as providing equipment and personnel sufficient in
136     quantity and quality to provide the same degree of safety to the pregnant woman and the
137     unborn child as would be provided for the particular medical procedures undertaken by a
138     general hospital licensed by the department.
139          [(6)] (7) "Information module" means the pregnancy termination information module
140     prepared by the department.
141          [(7)] (8) "Medical emergency" means that condition which, on the basis of the

142     physician's good faith clinical judgment, so threatens the life of a pregnant woman as to
143     necessitate the immediate abortion of her pregnancy to avert her death, or for which a delay
144     will create serious risk of substantial and irreversible impairment of major bodily function.
145          [(8)] (9) "Minor" means an individual who is:
146          (a) under 18 years of age;
147          (b) unmarried; and
148          (c) not emancipated.
149          [(9)] (10) (a) "Partial birth abortion" means an abortion in which the person performing
150     the abortion:
151          (i) deliberately and intentionally vaginally delivers a living fetus until, in the case of a
152     head first presentation, the entire fetal head is outside the body of the mother, or, in the case of
153     breech presentation, any part of the fetal trunk past the navel is outside the body of the mother,
154     for the purpose of performing an overt act that the person knows will kill the partially delivered
155     living fetus; and
156          (ii) performs the overt act, other than completion of delivery, that kills the partially
157     living fetus.
158          (b) "Partial birth abortion" does not include the dilation and evacuation procedure
159     involving dismemberment prior to removal, the suction curettage procedure, or the suction
160     aspiration procedure for abortion.
161          [(10)] (11) "Physician" means:
162          (a) a medical doctor licensed to practice medicine and surgery under Title 58, Chapter
163     67, Utah Medical Practice Act;
164          (b) an osteopathic physician licensed to practice osteopathic medicine under Title 58,
165     Chapter 68, Utah Osteopathic Medical Practice Act; or
166          (c) a physician employed by the federal government who has qualifications similar to a
167     person described in Subsection [(10)] (11)(a) or (b).
168          Section 5. Section 76-7-302.4 is enacted to read:
169          76-7-302.4. Abortion restriction of an unborn child with Down syndrome.

170          Notwithstanding any other provision of this part, an abortion may not be performed if
171     the pregnant mother's sole reason for the abortion is that the unborn child has or may have
172     Down syndrome, unless the abortion is permissible for a reason described in Subsection
173     76-7-302(3)(b).
174          Section 6. Section 76-7-305 is amended to read:
175          76-7-305. Informed consent requirements for abortion -- 72-hour wait mandatory
176     -- Exceptions.
177          (1) A person may not perform an abortion, unless, before performing the abortion, the
178     physician who will perform the abortion obtains from the woman on whom the abortion is to
179     be performed a voluntary and informed written consent [from the woman on whom the
180     abortion is performed,] that is consistent with:
181          (a) Section 8.08 of the American Medical Association's Code of Medical Ethics,
182     Current Opinions; and
183          (b) the provisions of this section.
184          (2) Except as provided in Subsection (8), consent to an abortion is voluntary and
185     informed only if, at least 72 hours before the abortion:
186          (a) a staff member of an abortion clinic or hospital, physician, registered nurse, nurse
187     practitioner, advanced practice registered nurse, certified nurse midwife, genetic counselor, or
188     physician's assistant presents the information module to the pregnant woman;
189          (b) the pregnant woman views the entire information module and presents evidence to
190     the individual described in Subsection (2)(a) that the pregnant woman viewed the entire
191     information module;
192          (c) after receiving the evidence described in Subsection (2)(b), the individual described
193     in Subsection (2)(a):
194          (i) documents that the pregnant woman viewed the entire information module;
195          (ii) gives the pregnant woman, upon her request, a copy of the documentation
196     described in Subsection (2)(c)(i); and
197          (iii) provides a copy of the statement described in Subsection (2)(c)(i) to the physician

198     who is to perform the abortion, upon request of that physician or the pregnant woman;
199          (d) after the pregnant woman views the entire information module, the physician who
200     is to perform the abortion, the referring physician, a physician, a registered nurse, nurse
201     practitioner, advanced practice registered nurse, certified nurse midwife, genetic counselor, or
202     physician's assistant, in a face-to-face consultation in any location in the state, orally informs
203     the woman of:
204          (i) the nature of the proposed abortion procedure;
205          (ii) specifically how the procedure described in Subsection (2)(d)(i) will affect the
206     fetus;
207          (iii) the risks and alternatives to the abortion procedure or treatment;
208          (iv) the options and consequences of aborting a medication-induced abortion, if the
209     proposed abortion procedure is a medication-induced abortion;
210          (v) the probable gestational age and a description of the development of the unborn
211     child at the time the abortion would be performed;
212          (vi) the medical risks associated with carrying her child to term; [and]
213          (vii) the right to view an ultrasound of the unborn child, at no expense to the pregnant
214     woman, upon her request; and
215          (viii) when the result of a prenatal screening or diagnostic test indicates that the unborn
216     child has or may have Down syndrome, the Department of Health website containing the
217     information described in Section 26-10-14, including the information on the informational
218     support sheet; and
219          (e) after the pregnant woman views the entire information module, a staff member of
220     the abortion clinic or hospital provides to the pregnant woman:
221          (i) on a document that the pregnant woman may take home:
222          (A) the address for the department's website described in Section 76-7-305.5; and
223          (B) a statement that the woman may request, from a staff member of the abortion clinic
224     or hospital where the woman viewed the information module, a printed copy of the material on
225     the department's website; and

226          (ii) a printed copy of the material on the department's website described in Section
227     76-7-305.5, if requested by the pregnant woman.
228          (3) Before performing an abortion, the physician who is to perform the abortion shall:
229          (a) in a face-to-face consultation, provide the information described in Subsection
230     (2)(d), unless the attending physician or referring physician is the individual who provided the
231     information required under Subsection (2)(d); and
232          (b) (i) obtain from the pregnant woman a written certification that the information
233     required to be provided under Subsection (2) and this Subsection (3) was provided in
234     accordance with the requirements of Subsection (2) and this Subsection (3); and
235          (ii) obtain a copy of the statement described in Subsection (2)(c)(i).
236          (4) When a serious medical emergency compels the performance of an abortion, the
237     physician shall inform the woman prior to the abortion, if possible, of the medical indications
238     supporting the physician's judgment that an abortion is necessary.
239          (5) If an ultrasound is performed on a woman before an abortion is performed, the
240     individual who performs the ultrasound, or another qualified individual, shall:
241          (a) inform the woman that the ultrasound images will be simultaneously displayed in a
242     manner to permit her to:
243          (i) view the images, if she chooses to view the images; or
244          (ii) not view the images, if she chooses not to view the images;
245          (b) simultaneously display the ultrasound images in order to permit the woman to:
246          (i) view the images, if she chooses to view the images; or
247          (ii) not view the images, if she chooses not to view the images;
248          (c) inform the woman that, if she desires, the person performing the ultrasound, or
249     another qualified person shall provide a detailed description of the ultrasound images,
250     including:
251          (i) the dimensions of the unborn child;
252          (ii) the presence of cardiac activity in the unborn child, if present and viewable; and
253          (iii) the presence of external body parts or internal organs, if present and viewable; and

254          (d) provide the detailed description described in Subsection [(6)] (5)(c), if the woman
255     requests it.
256          (6) The information described in Subsections (2), (3), and (5) is not required to be
257     provided to a pregnant woman under this section if the abortion is performed for a reason
258     described in:
259          (a) Subsection 76-7-302(3)(b)(i), if the treating physician and one other physician
260     concur, in writing, that the abortion is necessary to avert:
261          (i) the death of the woman on whom the abortion is performed; or
262          (ii) a serious risk of substantial and irreversible impairment of a major bodily function
263     of the woman on whom the abortion is performed; or
264          (b) Subsection 76-7-302(3)(b)(ii).
265          (7) In addition to the criminal penalties described in this part, a physician who violates
266     the provisions of this section:
267          (a) is guilty of unprofessional conduct as defined in Section 58-67-102 or 58-68-102;
268     and
269          (b) shall be subject to:
270          (i) suspension or revocation of the physician's license for the practice of medicine and
271     surgery in accordance with Section 58-67-401 or 58-68-401; and
272          (ii) administrative penalties in accordance with Section 58-67-402 or 58-68-402.
273          (8) A physician is not guilty of violating this section for failure to furnish any of the
274     information described in Subsection (2) or (3), or for failing to comply with Subsection (5), if:
275          (a) the physician can demonstrate by a preponderance of the evidence that the
276     physician reasonably believed that furnishing the information would have resulted in a severely
277     adverse effect on the physical or mental health of the pregnant woman;
278          (b) in the physician's professional judgment, the abortion was necessary to avert:
279          (i) the death of the woman on whom the abortion is performed; or
280          (ii) a serious risk of substantial and irreversible impairment of a major bodily function
281     of the woman on whom the abortion is performed;

282          (c) the pregnancy was the result of rape or rape of a child, as defined in Sections
283     76-5-402 and 76-5-402.1;
284          (d) the pregnancy was the result of incest, as defined in Subsection 76-5-406(10) and
285     Section 76-7-102; or
286          (e) at the time of the abortion, the pregnant woman was 14 years of age or younger.
287          (9) A physician who complies with the provisions of this section and Section
288     76-7-304.5 may not be held civilly liable to the physician's patient for failure to obtain
289     informed consent under Section 78B-3-406.
290          (10) (a) The department shall provide an ultrasound, in accordance with the provisions
291     of Subsection (5)(b), at no expense to the pregnant woman.
292          (b) A local health department shall refer a pregnant woman who requests an ultrasound
293     described in Subsection (10)(a) to the department.
294          (11) A physician is not guilty of violating this section if:
295          (a) the information described in Subsection (2) is provided less than 72 hours before
296     the physician performs the abortion; and
297          (b) in the physician's professional judgment, the abortion was necessary in a case
298     where:
299          (i) a ruptured membrane, documented by the attending or referring physician, will
300     cause a serious infection; or
301          (ii) a serious infection, documented by the attending or referring physician, will cause a
302     ruptured membrane.
303          Section 7. Section 76-7-309 is amended to read:
304          76-7-309. Pathologist's report.
305          Any human tissue removed during an abortion shall be submitted to a pathologist who
306     shall make a report, including[, but not limited to whether there was a pregnancy, and if
307     possible,] whether:
308          (1) the pregnancy was aborted by evacuating the uterus[.]; and
309          (2) a medical record indicates that, through a prenatal screening or other diagnostic

310     test, the aborted fetus had or may have had Down syndrome.
311          Section 8. Section 76-7-313 is amended to read:
312          76-7-313. Department's enforcement responsibility -- Physician's report to
313     department.
314          (1) In order for the department to maintain necessary statistical information and ensure
315     enforcement of the provisions of this part:
316          (a) any physician performing an abortion must obtain and record in writing:
317          (i) the age, marital status, and county of residence of the woman on whom the abortion
318     was performed;
319          (ii) the number of previous abortions performed on the woman described in Subsection
320     (1)(a);
321          (iii) the hospital or other facility where the abortion was performed;
322          (iv) the weight in grams of the unborn child aborted, if it is possible to ascertain;
323          (v) the pathological description of the unborn child;
324          (vi) the given menstrual age of the unborn child;
325          (vii) the measurements of the unborn child, if possible to ascertain; and
326          (viii) the medical procedure used to abort the unborn child; and
327          (b) the department shall make rules in accordance with Title 63G, Chapter 3, Utah
328     Administrative Rulemaking Act.
329          (2) Each physician who performs an abortion shall provide the following to the
330     department within 30 days after the day on which the abortion is performed:
331          (a) the information described in Subsection (1);
332          (b) a copy of the pathologist's report described in Section 76-7-309;
333          (c) an affidavit:
334          (i) [that] indicating whether the required consent was obtained pursuant to Sections
335     76-7-305 and 76-7-305.5; [and]
336          (ii) described in Subsection (3), if applicable; and
337          (iii) indicating whether at the time the physician performed the abortion, the physician

338     had any knowledge that the pregnant woman sought the abortion solely because the unborn
339     child had or may have had Down syndrome; and
340          (d) a certificate indicating:
341          (i) whether the unborn child was or was not viable, as defined in Subsection
342     76-7-302(1), at the time of the abortion; and
343          (ii) if the unborn child was viable, as defined in Subsection 76-7-302(1), at the time of
344     the abortion, the reason for the abortion.
345          (3) If the information module or the address to the website is not provided to a
346     pregnant woman, the physician who performs the abortion on the woman shall, within 10 days
347     after the day on which the abortion is performed, provide to the department an affidavit that:
348          (a) specifies the information that was not provided to the woman; and
349          (b) states the reason that the information was not provided to the woman.
350          (4) All information supplied to the department shall be confidential and privileged
351     pursuant to Title 26, Chapter 25, Confidential Information Release.
352          (5) The department shall pursue all administrative and legal remedies when the
353     department determines that a physician or a facility has not complied with the provisions of this
354     part.
355          Section 9. Contingent effective date.
356          (1) As used in this section, "a court of binding authority" means:
357          (a) the United States Supreme Court; or
358          (b) after the right to appeal has been exhausted:
359          (i) the United States Court of Appeals for the Tenth Circuit;
360          (ii) the Utah Supreme Court; or
361          (iii) the Utah Court of Appeals.
362          (2) Except as provided in Subsection (3), this bill takes effect on May 14, 2019.
363          (3) Section 76-7-302.4 takes effect on the date that the legislative general counsel
364     certifies to the Legislative Management Committee that a court of binding authority holds that
365     a state may prohibit the abortion of an unborn child before the unborn child is viable outside of

366     the mother if the sole reason for the abortion is that the unborn child has or may have Down
367     syndrome.