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UNDIAGNOSED CHILDREN INSURANCE COVERAGE

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AMENDMENTS

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2019 GENERAL SESSION

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STATE OF UTAH

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Chief Sponsor: Steve Eliason

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Senate Sponsor: David G. Buxton

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8     LONG TITLE
9     General Description:
10          This bill requires the state Medicaid program and Public Employees' Benefit and
11     Insurance Program to cover exome sequence testing.
12     Highlighted Provisions:
13          This bill:
14          ▸     defines terms; and
15          ▸     requires the state Medicaid program and Public Employees' Benefit and Insurance
16     Program to cover exome sequence testing for certain enrollees.
17     Money Appropriated in this Bill:
18          None
19     Other Special Clauses:
20          None
21     Utah Code Sections Affected:
22     ENACTS:
23          26-18-25, Utah Code Annotated 1953
24          49-20-419, Utah Code Annotated 1953
25     

26     Be it enacted by the Legislature of the state of Utah:
27          Section 1. Section 26-18-25 is enacted to read:
28          26-18-25. Coverage of exome sequence testing.

29          (1) As used in this section, "exome sequence testing" means a genomic technique for
30     sequencing the genome of an individual for diagnostic purposes.
31          (2) The Medicaid program shall reimburse for exome sequence testing:
32          (a) for an enrollee who:
33          (i) is younger than 21 years of age; and
34          (ii) who remains undiagnosed after exhausting all other appropriate diagnostic-related
35     tests;
36          (b) performed by a nationally recognized provider with significant experience in exome
37     sequence testing;
38          (c) that is medically necessary; and
39          (d) at a rate set by the Medicaid program.
40          Section 2. Section 49-20-419 is enacted to read:
41          49-20-419. Coverage of exome sequence testing.
42          (1) As used in this section, "exome sequence testing" means a genomic technique for
43     sequencing the genome of an individual for diagnostic purposes.
44          (2) Beginning July 1, 2019, the program shall provide coverage for exome sequence
45     testing:
46          (a) for a covered individual within the state risk pool who:
47          (i) is younger than 21 years of age; and
48          (ii) who remains undiagnosed after exhausting all other appropriate diagnostic-related
49     tests;
50          (b) performed by a nationally recognized provider with significant experience in exome
51     sequence testing;
52          (c) that is medically necessary; and
53          (d) at a rate set by the program.