1     
DOWN SYNDROME NONDISCRIMINATION ABORTION ACT

2     
2019 GENERAL SESSION

3     
STATE OF UTAH

4     
Chief Sponsor: Karianne Lisonbee

5     
Senate Sponsor: Curtis S. Bramble

6     

7     LONG TITLE
8     General Description:
9          This bill concerns an unborn child with Down syndrome.
10     Highlighted Provisions:
11          This bill:
12          ▸     defines "Down syndrome";
13          ▸     requires the Department of Health to create a Down syndrome informational
14     support sheet and publish the same information on the department's website;
15          ▸     requires that a pregnant woman be provided certain information before receiving an
16     abortion when a prenatal screening or diagnostic test indicates that the pregnant
17     woman's unborn child has or may have Down syndrome;
18          ▸     after expressly permitted by a court of binding authority, prohibits a person from
19     performing, inducing, or attempting to perform or induce an abortion on a pregnant
20     woman who is seeking the abortion solely because an unborn child has or may have
21     Down syndrome;
22          ▸     requires an abortion pathology report to provide information about whether an
23     aborted child had or may have had Down syndrome;
24          ▸     requires a physician who performed an abortion to state whether the physician had
25     any knowledge that the pregnant woman sought the abortion solely because the
26     unborn child had or may have had Down syndrome; and
27          ▸     makes technical changes.

28     Money Appropriated in this Bill:
29          None
30     Other Special Clauses:
31          This bill provides a special effective date.
32     Utah Code Sections Affected:
33     AMENDS:
34          26-10-1, as last amended by Laws of Utah 2011, Chapters 147, 366 and last amended
35     by Coordination Clause, Laws of Utah 2011, Chapter 366
36          63I-2-276, as last amended by Laws of Utah 2018, Chapter 38
37          76-7-301, as last amended by Laws of Utah 2018, Chapter 282
38          76-7-305, as last amended by Laws of Utah 2018, Chapter 282
39          76-7-309, as enacted by Laws of Utah 1974, Chapter 33
40          76-7-313, as last amended by Laws of Utah 2018, Chapter 282
41     ENACTS:
42          26-10-14, Utah Code Annotated 1953
43          76-7-302.4, Utah Code Annotated 1953
44     

45     Be it enacted by the Legislature of the state of Utah:
46          Section 1. Section 26-10-1 is amended to read:
47          26-10-1. Definitions.
48          As used in this chapter:
49          (1) "Down syndrome" means a genetic condition associated with an extra chromosome
50     21, in whole or in part, or an effective trisomy for chromosome 21.
51          [(1)] (2) "Maternal and child health services" means:
52          (a) the provision of educational, preventative, diagnostic, and treatment services,
53     including medical care, hospitalization, and other institutional care and aftercare, appliances,
54     and facilitating services directed toward reducing infant mortality and improving the health of
55     mothers and children provided, however, that nothing in this Subsection [(1)] (2) shall be
56     construed to allow any agency of the state to interfere with the rights of the parent of an
57     unmarried minor in decisions about the providing of health information or services;
58          (b) the development, strengthening, and improvement of standards and techniques

59     relating to the services and care;
60          (c) the training of personnel engaged in the provision, development, strengthening, or
61     improvement of the services and care; and
62          (d) necessary administrative services connected with Subsections [(1)] (2)(a), (b), and
63     (c).
64          [(2)] (3) "Minor" means a person under the age of 18.
65          [(3)] (4) "Services to children with disabilities" means:
66          (a) the early location of children with a disability, provided that any program of
67     prenatal diagnosis for the purpose of detecting the possible disease or disabilities of an unborn
68     child will not be used for screening, but rather will be utilized only when there are medical or
69     genetic indications that warrant diagnosis;
70          (b) the provision for children described in Subsection [(3)] (4)(a), of preventive,
71     diagnosis, and treatment services, including medical care, hospitalization, and other
72     institutional care and aftercare, appliances, and facilitating services directed toward the
73     diagnosis of the condition of those children or toward the restoration of the children to
74     maximum physical and mental health;
75          (c) the development, strengthening, and improvement of standards and techniques
76     relating to services and care described in this Subsection [(3)] (4);
77          (d) the training of personnel engaged in the provision, development, strengthening, or
78     improvement of services and care described in this Subsection [(3)] (4); and
79          (e) necessary administrative services connected with Subsections [(3)] (4)(a), (b), and
80     (c).
81          Section 2. Section 26-10-14 is enacted to read:
82          26-10-14. Down syndrome diagnosis -- Information and support.
83          (1) The department shall provide contact information for state and national Down
84     syndrome organizations that are nonprofit and that provide information and support services
85     for parents, including first-call programs and information hotlines specific to Down syndrome,
86     resource centers or clearinghouses, and other education and support programs for Down
87     syndrome.
88          (2) The department shall:
89          (a) post the information described in Subsection (1) on the department's website; and

90          (b) create an informational support sheet with the information described in Subsection
91     (1) and the web address described in Subsection (2)(a).
92          (3) A Down syndrome organization may request that the department include the
93     organization's informational material and contact information on the website. The department
94     may add the information to the website, if the information meets the description under
95     Subsection (1).
96          Section 3. Section 63I-2-276 is amended to read:
97          63I-2-276. Repeal dates -- Title 76.
98          (1) If Section 76-7-302.4 is not in effect before January 1, 2029, Section 76-7-302.4 is
99     repealed January 1, 2029.
100          (2) Section 76-7-305.7 is repealed January 1, 2023.
101          Section 4. Section 76-7-301 is amended to read:
102          76-7-301. Definitions.
103          As used in this part:
104          (1) (a) "Abortion" means:
105          (i) the intentional termination or attempted termination of human pregnancy after
106     implantation of a fertilized ovum through a medical procedure carried out by a physician or
107     through a substance used under the direction of a physician;
108          (ii) the intentional killing or attempted killing of a live unborn child through a medical
109     procedure carried out by a physician or through a substance used under the direction of a
110     physician; or
111          (iii) the intentional causing or attempted causing of a miscarriage through a medical
112     procedure carried out by a physician or through a substance used under the direction of a
113     physician.
114          (b) "Abortion" does not include:
115          (i) removal of a dead unborn child;
116          (ii) removal of an ectopic pregnancy; or
117          (iii) the killing or attempted killing of an unborn child without the consent of the
118     pregnant woman, unless:
119          (A) the killing or attempted killing is done through a medical procedure carried out by
120     a physician or through a substance used under the direction of a physician; and

121          (B) the physician is unable to obtain the consent due to a medical emergency.
122          (2) "Abortion clinic" means the same as that term is defined in Section 26-21-2.
123          (3) "Abuse" means the same as that term is defined in Section 78A-6-105.
124          (4) "Department" means the Department of Health.
125          (5) "Down syndrome" means a genetic condition associated with an extra chromosome
126     21, in whole or in part, or an effective trisomy for chromosome 21.
127          [(5)] (6) "Hospital" means:
128          (a) a general hospital licensed by the department according to Title 26, Chapter 21,
129     Health Care Facility Licensing and Inspection Act; and
130          (b) a clinic or other medical facility to the extent that such clinic or other medical
131     facility is certified by the department as providing equipment and personnel sufficient in
132     quantity and quality to provide the same degree of safety to the pregnant woman and the
133     unborn child as would be provided for the particular medical procedures undertaken by a
134     general hospital licensed by the department.
135          [(6)] (7) "Information module" means the pregnancy termination information module
136     prepared by the department.
137          [(7)] (8) "Medical emergency" means that condition which, on the basis of the
138     physician's good faith clinical judgment, so threatens the life of a pregnant woman as to
139     necessitate the immediate abortion of her pregnancy to avert her death, or for which a delay
140     will create serious risk of substantial and irreversible impairment of major bodily function.
141          [(8)] (9) "Minor" means an individual who is:
142          (a) under 18 years of age;
143          (b) unmarried; and
144          (c) not emancipated.
145          [(9)] (10) (a) "Partial birth abortion" means an abortion in which the person performing
146     the abortion:
147          (i) deliberately and intentionally vaginally delivers a living fetus until, in the case of a
148     head first presentation, the entire fetal head is outside the body of the mother, or, in the case of
149     breech presentation, any part of the fetal trunk past the navel is outside the body of the mother,
150     for the purpose of performing an overt act that the person knows will kill the partially delivered
151     living fetus; and

152          (ii) performs the overt act, other than completion of delivery, that kills the partially
153     living fetus.
154          (b) "Partial birth abortion" does not include the dilation and evacuation procedure
155     involving dismemberment prior to removal, the suction curettage procedure, or the suction
156     aspiration procedure for abortion.
157          [(10)] (11) "Physician" means:
158          (a) a medical doctor licensed to practice medicine and surgery under Title 58, Chapter
159     67, Utah Medical Practice Act;
160          (b) an osteopathic physician licensed to practice osteopathic medicine under Title 58,
161     Chapter 68, Utah Osteopathic Medical Practice Act; or
162          (c) a physician employed by the federal government who has qualifications similar to a
163     person described in Subsection [(10)] (11)(a) or (b).
164          Section 5. Section 76-7-302.4 is enacted to read:
165          76-7-302.4. Abortion restriction of an unborn child with Down syndrome.
166          Notwithstanding any other provision of this part, an abortion may not be performed if
167     the pregnant mother's sole reason for the abortion is that the unborn child has or may have
168     Down syndrome, unless the abortion is permissible for a reason described in Subsection
169     76-7-302(3)(b).
170          Section 6. Section 76-7-305 is amended to read:
171          76-7-305. Informed consent requirements for abortion -- 72-hour wait mandatory
172     -- Exceptions.
173          (1) A person may not perform an abortion, unless, before performing the abortion, the
174     physician who will perform the abortion obtains from the woman on whom the abortion is to
175     be performed a voluntary and informed written consent [from the woman on whom the
176     abortion is performed,] that is consistent with:
177          (a) Section 8.08 of the American Medical Association's Code of Medical Ethics,
178     Current Opinions; and
179          (b) the provisions of this section.
180          (2) Except as provided in Subsection (8), consent to an abortion is voluntary and
181     informed only if, at least 72 hours before the abortion:
182          (a) a staff member of an abortion clinic or hospital, physician, registered nurse, nurse

183     practitioner, advanced practice registered nurse, certified nurse midwife, genetic counselor, or
184     physician's assistant presents the information module to the pregnant woman;
185          (b) the pregnant woman views the entire information module and presents evidence to
186     the individual described in Subsection (2)(a) that the pregnant woman viewed the entire
187     information module;
188          (c) after receiving the evidence described in Subsection (2)(b), the individual described
189     in Subsection (2)(a):
190          (i) documents that the pregnant woman viewed the entire information module;
191          (ii) gives the pregnant woman, upon her request, a copy of the documentation
192     described in Subsection (2)(c)(i); and
193          (iii) provides a copy of the statement described in Subsection (2)(c)(i) to the physician
194     who is to perform the abortion, upon request of that physician or the pregnant woman;
195          (d) after the pregnant woman views the entire information module, the physician who
196     is to perform the abortion, the referring physician, a physician, a registered nurse, nurse
197     practitioner, advanced practice registered nurse, certified nurse midwife, genetic counselor, or
198     physician's assistant, in a face-to-face consultation in any location in the state, orally informs
199     the woman of:
200          (i) the nature of the proposed abortion procedure;
201          (ii) specifically how the procedure described in Subsection (2)(d)(i) will affect the
202     fetus;
203          (iii) the risks and alternatives to the abortion procedure or treatment;
204          (iv) the options and consequences of aborting a medication-induced abortion, if the
205     proposed abortion procedure is a medication-induced abortion;
206          (v) the probable gestational age and a description of the development of the unborn
207     child at the time the abortion would be performed;
208          (vi) the medical risks associated with carrying her child to term; [and]
209          (vii) the right to view an ultrasound of the unborn child, at no expense to the pregnant
210     woman, upon her request; and
211          (viii) when the result of a prenatal screening or diagnostic test indicates that the unborn
212     child has or may have Down syndrome, the information described in Section 26-10-14,
213     including the information on the informational support sheet and the address to the website;

214     and
215          (e) after the pregnant woman views the entire information module, a staff member of
216     the abortion clinic or hospital provides to the pregnant woman:
217          (i) on a document that the pregnant woman may take home:
218          (A) the address for the department's website described in Section 76-7-305.5; and
219          (B) a statement that the woman may request, from a staff member of the abortion clinic
220     or hospital where the woman viewed the information module, a printed copy of the material on
221     the department's website; and
222          (ii) a printed copy of the material on the department's website described in Section
223     76-7-305.5, if requested by the pregnant woman.
224          (3) Before performing an abortion, the physician who is to perform the abortion shall:
225          (a) in a face-to-face consultation, provide the information described in Subsection
226     (2)(d), unless the attending physician or referring physician is the individual who provided the
227     information required under Subsection (2)(d); and
228          (b) (i) obtain from the pregnant woman a written certification that the information
229     required to be provided under Subsection (2) and this Subsection (3) was provided in
230     accordance with the requirements of Subsection (2) and this Subsection (3); and
231          (ii) obtain a copy of the statement described in Subsection (2)(c)(i).
232          (4) When a serious medical emergency compels the performance of an abortion, the
233     physician shall inform the woman prior to the abortion, if possible, of the medical indications
234     supporting the physician's judgment that an abortion is necessary.
235          (5) If an ultrasound is performed on a woman before an abortion is performed, the
236     individual who performs the ultrasound, or another qualified individual, shall:
237          (a) inform the woman that the ultrasound images will be simultaneously displayed in a
238     manner to permit her to:
239          (i) view the images, if she chooses to view the images; or
240          (ii) not view the images, if she chooses not to view the images;
241          (b) simultaneously display the ultrasound images in order to permit the woman to:
242          (i) view the images, if she chooses to view the images; or
243          (ii) not view the images, if she chooses not to view the images;
244          (c) inform the woman that, if she desires, the person performing the ultrasound, or

245     another qualified person shall provide a detailed description of the ultrasound images,
246     including:
247          (i) the dimensions of the unborn child;
248          (ii) the presence of cardiac activity in the unborn child, if present and viewable; and
249          (iii) the presence of external body parts or internal organs, if present and viewable; and
250          (d) provide the detailed description described in Subsection [(6)] (5)(c), if the woman
251     requests it.
252          (6) The information described in Subsections (2), (3), and (5) is not required to be
253     provided to a pregnant woman under this section if the abortion is performed for a reason
254     described in:
255          (a) Subsection 76-7-302(3)(b)(i), if the treating physician and one other physician
256     concur, in writing, that the abortion is necessary to avert:
257          (i) the death of the woman on whom the abortion is performed; or
258          (ii) a serious risk of substantial and irreversible impairment of a major bodily function
259     of the woman on whom the abortion is performed; or
260          (b) Subsection 76-7-302(3)(b)(ii).
261          (7) In addition to the criminal penalties described in this part, a physician who violates
262     the provisions of this section:
263          (a) is guilty of unprofessional conduct as defined in Section 58-67-102 or 58-68-102;
264     and
265          (b) shall be subject to:
266          (i) suspension or revocation of the physician's license for the practice of medicine and
267     surgery in accordance with Section 58-67-401 or 58-68-401; and
268          (ii) administrative penalties in accordance with Section 58-67-402 or 58-68-402.
269          (8) A physician is not guilty of violating this section for failure to furnish any of the
270     information described in Subsection (2) or (3), or for failing to comply with Subsection (5), if:
271          (a) the physician can demonstrate by a preponderance of the evidence that the
272     physician reasonably believed that furnishing the information would have resulted in a severely
273     adverse effect on the physical or mental health of the pregnant woman;
274          (b) in the physician's professional judgment, the abortion was necessary to avert:
275          (i) the death of the woman on whom the abortion is performed; or

276          (ii) a serious risk of substantial and irreversible impairment of a major bodily function
277     of the woman on whom the abortion is performed;
278          (c) the pregnancy was the result of rape or rape of a child, as defined in Sections
279     76-5-402 and 76-5-402.1;
280          (d) the pregnancy was the result of incest, as defined in Subsection 76-5-406(10) and
281     Section 76-7-102; or
282          (e) at the time of the abortion, the pregnant woman was 14 years of age or younger.
283          (9) A physician who complies with the provisions of this section and Section
284     76-7-304.5 may not be held civilly liable to the physician's patient for failure to obtain
285     informed consent under Section 78B-3-406.
286          (10) (a) The department shall provide an ultrasound, in accordance with the provisions
287     of Subsection (5)(b), at no expense to the pregnant woman.
288          (b) A local health department shall refer a pregnant woman who requests an ultrasound
289     described in Subsection (10)(a) to the department.
290          (11) A physician is not guilty of violating this section if:
291          (a) the information described in Subsection (2) is provided less than 72 hours before
292     the physician performs the abortion; and
293          (b) in the physician's professional judgment, the abortion was necessary in a case
294     where:
295          (i) a ruptured membrane, documented by the attending or referring physician, will
296     cause a serious infection; or
297          (ii) a serious infection, documented by the attending or referring physician, will cause a
298     ruptured membrane.
299          Section 7. Section 76-7-309 is amended to read:
300          76-7-309. Pathologist's report.
301          Any human tissue removed during an abortion shall be submitted to a pathologist who
302     shall make a report, including[, but not limited to whether there was a pregnancy, and if
303     possible,] whether:
304          (1) the pregnancy was aborted by evacuating the uterus[.]; and
305          (2) a medical record indicates that, through a prenatal screening or other diagnostic
306     test, the aborted fetus had or may have had Down syndrome.

307          Section 8. Section 76-7-313 is amended to read:
308          76-7-313. Department's enforcement responsibility -- Physician's report to
309     department.
310          (1) In order for the department to maintain necessary statistical information and ensure
311     enforcement of the provisions of this part:
312          (a) any physician performing an abortion must obtain and record in writing:
313          (i) the age, marital status, and county of residence of the woman on whom the abortion
314     was performed;
315          (ii) the number of previous abortions performed on the woman described in Subsection
316     (1)(a);
317          (iii) the hospital or other facility where the abortion was performed;
318          (iv) the weight in grams of the unborn child aborted, if it is possible to ascertain;
319          (v) the pathological description of the unborn child;
320          (vi) the given menstrual age of the unborn child;
321          (vii) the measurements of the unborn child, if possible to ascertain; and
322          (viii) the medical procedure used to abort the unborn child; and
323          (b) the department shall make rules in accordance with Title 63G, Chapter 3, Utah
324     Administrative Rulemaking Act.
325          (2) Each physician who performs an abortion shall provide the following to the
326     department within 30 days after the day on which the abortion is performed:
327          (a) the information described in Subsection (1);
328          (b) a copy of the pathologist's report described in Section 76-7-309;
329          (c) an affidavit:
330          (i) [that] indicating whether the required consent was obtained pursuant to Sections
331     76-7-305 and 76-7-305.5; [and]
332          (ii) described in Subsection (3), if applicable; and
333          (iii) indicating whether at the time the physician performed the abortion, the physician
334     had any knowledge that the pregnant woman sought the abortion solely because the unborn
335     child had or may have had Down syndrome; and
336          (d) a certificate indicating:
337          (i) whether the unborn child was or was not viable, as defined in Subsection

338     76-7-302(1), at the time of the abortion; and
339          (ii) if the unborn child was viable, as defined in Subsection 76-7-302(1), at the time of
340     the abortion, the reason for the abortion.
341          (3) If the information module or the address to the website is not provided to a
342     pregnant woman, the physician who performs the abortion on the woman shall, within 10 days
343     after the day on which the abortion is performed, provide to the department an affidavit that:
344          (a) specifies the information that was not provided to the woman; and
345          (b) states the reason that the information was not provided to the woman.
346          (4) All information supplied to the department shall be confidential and privileged
347     pursuant to Title 26, Chapter 25, Confidential Information Release.
348          (5) The department shall pursue all administrative and legal remedies when the
349     department determines that a physician or a facility has not complied with the provisions of this
350     part.
351          Section 9. Contingent effective date.
352          (1) As used in this section, "a court of binding authority" means:
353          (a) the United States Supreme Court; or
354          (b) after the right to appeal has been exhausted:
355          (i) the United States Court of Appeals for the Tenth Circuit;
356          (ii) the Utah Supreme Court; or
357          (iii) the Utah Court of Appeals.
358          (2) Except as provided in Subsection (3), this bill takes effect on May 14, 2019.
359          (3) Section 76-7-302.4 takes effect on the date that the legislative general counsel
360     certifies to the Legislative Management Committee that a court of binding authority holds that
361     a state may prohibit the abortion of an unborn child before the unborn child is viable outside of
362     the mother if the sole reason for the abortion is that the unborn child has or may have Down
363     syndrome.