To: Rep. Perry, L.,
Subject: "Please let the Body hear HB105, pass HB105 out of rules."
I am writing this letter on behalf of my brother Eric and his family, they have a son Peyton that suffers from “Dravet Syndrome” a genetic disorder. Their lives have been greatly impacted by these horrific seizures that occur multiple times on most days. His seizures began when he was 11 months old, he is now 10, the last five years, his seizures have gotten worse. They have tried 14 anti- seizure medications none of which have relieved him of his seizures in addition to the horrible side effects. “Alepsia,” is an extract that has given many children and families relief by significantly reducing the number of seizures that they have.
It would be wonderful for families and children like Peyton to have the opportunity to live a “normal” life. Eric and his family are very limited as to what they are able to do, generally one parent must stay at home with Peyton to care for him. They are unable to attend church together, have quality family time, and often miss out on their other children’s activities. Peyton is an amazing little boy, throughout all of the trials and hardships in his life, he manages to keep his mischievous wonderful smile. There is no doubt in my mind that if you had the chance to meet this wonderful, loving family and could see what their day to day life was like you would not hesitate to vote “yes” on HB105:Plant Extract Amendment.
Please visit the website, www.hope4childrenwithpilepsy.com. This is a great site to learn more about “Alepsia” and about the children and families that suffer from severe epilepsy.
Thank you for your time,