First Substitute S.R. 3

Senator Gregory S. Bell proposes the following substitute bill:

1 RESOLUTION DESIGNATING SEPTEMBER
2 2009 AS HYDROCEPHALUS AWARENESS
3 MONTH AND URGING NATIONAL REGISTRY
4 2009 GENERAL SESSION
5 STATE OF UTAH
6 Chief Sponsor: Gregory S. Bell
7
8 LONG TITLE
9 General Description:
10 This resolution of the Senate designates September 2009 as Hydrocephalus Awareness
11 Month, and urges the Federal government to create a national registry for collecting
12 comprehensive statistics and date regarding Hydrocephalus.
13 Highlighted Provisions:
14 This resolution:
15 . designates September 2009 as Hydrocephalus Awareness Month in the state of
16 Utah; and
17 . urges the Federal government to create a national registry for collecting
18 comprehensive statistics and data regarding Hydrocephalus and its impact on
19 American families.
20 Special Clauses:
21 None
22
23 Be it resolved by the Senate of the state of Utah:
24 WHEREAS, hydrocephalus is a serious neurological condition characterized by the
25 abnormal buildup of cerebrospinal fluids in the ventricles of the brain;

26 WHEREAS, there is no known cure for hydrocephalus, which affects an estimated one
27 million Americans;
28 WHEREAS, one in every 2,700 infants are born with hydrocephalus;
29 WHEREAS, more than 375,000 older Americans have hydrocephalus, which often
30 remains undetected or incorrectly diagnosed as dementia, Alzheimer's disease, or Parkinson's
31 disease;
32 WHEREAS, with appropriate diagnosis and treatment, people with hydrocephalus have
33 the opportunity to live full and productive lives;
34 WHEREAS, the standard treatment for hydrocephalus was developed in 1952 and
35 unfortunately carries multiple risks including shunt failure, infection, and over drainage;
36 WHEREAS, each year American taxpayers spend more than $1 billion to treat
37 hydrocephalus;
38 WHEREAS, the Hydrocephalus Association is one of the nation's oldest and largest
39 patient and research advocacy and support networks for individuals suffering from
40 hydrocephalus; and
41 WHEREAS, the Federal government should create a registry for collecting data and
42 statistics on the impact of hydrocephalus:
43 NOW, THEREFORE, BE IT RESOLVED that the Senate of the state of Utah
44 designates September 2009 as Hydrocephalus Awareness Month in the state of Utah.
45 BE IT FURTHER RESOLVED that the Legislature of the state of Utah urges the
46 Federal government to create a national registry for collecting comprehensive statistics and
47 data regarding hydrocephalus and its impact on American families.
48 BE IT FURTHER RESOLVED that a copy of this resolution be sent to the
49 Hydrocephalus Association, the United States Department of Health and Human Services, the
50 Utah Department of Health, and to the members of Utah's congressional delegation.