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First Substitute H.B. 311

Representative Rebecca D. Lockhart proposes the following substitute bill:




Chief Sponsor: Rebecca D. Lockhart

Senate Sponsor: Curtis S. Bramble

             7      LONG TITLE
             8      General Description:
             9          This bill creates a restricted account within the General Fund to be administered by the
             10      Department of Health for the receipt and expenditure of certain gifts, donations, and
             11      appropriations to be used for providing services relating to autism.
             12      Highlighted Provisions:
             13          This bill:
             14          .    creates a restricted account within the General Fund to be known as the Autism
             15      Treatment Account for the receipt and expenditure of certain gifts, donations, and
             16      appropriations to be used for services relating to autism; and
             17          .    provides for the administration and use of the account.
             18      Monies Appropriated in this Bill:
             19          None
             20      Other Special Clauses:
             21          None
             22      Utah Code Sections Affected:
             23      ENACTS:
             24          26-52-101, Utah Code Annotated 1953
             25          26-52-102, Utah Code Annotated 1953

             26          26-52-201, Utah Code Annotated 1953
             27          26-52-202, Utah Code Annotated 1953
             29      Be it enacted by the Legislature of the state of Utah:
             30          Section 1. Section 26-52-101 is enacted to read:

Part 1. General Provisions

             33          26-52-101. Title.
             34          This chapter is known as the "Autism Treatment Account."
             35          Section 2. Section 26-52-102 is enacted to read:
             36          26-52-102. Definitions.
             37          As used in this chapter:
             38          (1) "Account" means the Autism Treatment Account created in Section 26-52-201 .
             39          (2) "Autism spectrum disorder" means a pervasive developmental disorder as defined
             40      by the most recent edition of the Diagnostic and Statistical Manual on Mental Disorders,
             41      including:
             42          (a) Autistic Disorder;
             43          (b) Asperger's Disorder; and
             44          (c) Pervasive Developmental Disorder Not Otherwise Specified.
             45          (3) "Committee" means the Autism Treatment Account Advisory Committee created
             46      under Section 26-52-202 .
             47          (4) "Early intensive behavior therapy" means therapy that:
             48          (a) involves intensive behavioral intervention over an extended period of time;
             49          (b) is evidence-based; and
             50          (c) is generally accepted by the medical community or the American Academy of
             51      Pediatrics as an effective treatment for young children with an autism spectrum disorder.
             52          Section 3. Section 26-52-201 is enacted to read:
Part 2. Autism Treatment Account and Advisory Committee

             54          26-52-201. Autism Treatment Account.
             55          (1) There is created within the General Fund a restricted account known as the Autism
             56      Treatment Account.

             57          (2) The account shall consist of:
             58          (a) gifts, grants, devises, donations, and bequests of real property, personal property, or
             59      services, from any source, or any other conveyance that may be made to the account from
             60      private sources;
             61          (b) interest and other earnings derived from the account monies; and
             62          (c) any additional amounts as appropriated by the Legislature.
             63          (3) (a) Except as provided under Subsection (3)(b), the executive director shall be
             64      responsible for administering the account.
             65          (b) The committee shall be responsible for the following actions in relation to the
             66      account, consistent with the requirements of this title:
             67          (i) prioritizing and allocating uses for account monies, as permitted under Subsection
             68      (4);
             69          (ii) determining what providers or organizations qualify for disbursements from the
             70      account for services rendered; and
             71          (iii) authorization of all other distributions from the account, except that disbursements
             72      for expenses authorized under Subsection (6) shall also require the approval of the executive
             73      director.
             74          (4) Account monies may be used to:
             75          (a) assist with the cost of evaluating and treating persons with an autism spectrum
             76      disorder;
             77          (b) provide persons with an autism spectrum disorder with treatments that utilize early
             78      intensive behavior therapy; and
             79          (c) provide grants to persons or organizations for providing the services described in
             80      Subsection (4)(a) or (b).
             81          (5) An individual who receives services that are paid for from the account or who
             82      receives services through an organization or provider that receives payment from the account
             83      shall:
             84          (a) be a resident of Utah;
             85          (b) have been diagnosed by a qualified professional as having an autism spectrum
             86      disorder;
             87          (c) be younger than eight years of age; and

             88          (d) have a need that can be met within the requirements of this title.
             89          (6) All actual and necessary operating expenses for the committee and staff shall be
             90      paid by the account.
             91          (7) Account monies may not be used for administrative or other expenses of the
             92      Department of Health that are not normally provided for by legislative appropriation.
             93          (8) All interest and other earnings derived from the account monies shall be deposited
             94      into the account.
             95          (9) The state treasurer shall invest the monies in the account under Title 51, Chapter 7,
             96      State Money Management Act.
             97          Section 4. Section 26-52-202 is enacted to read:
             98          26-52-202. Autism Treatment Account Advisory Committee -- Membership --
             99      Time limit.
             100          (1) (a) There is created an Autism Treatment Account Advisory Committee consisting
             101      of five members appointed by the governor to two-year terms of office as follows:
             102          (i) one person holding a doctorate degree who has experience in treating persons with
             103      an autism spectrum disorder;
             104          (ii) one person who is a physician licensed under Title 58, Chapter 67, Utah Medical
             105      Practice Act, or Title 58, Chapter 68, Utah Osteopathic Medical Practice Act, who has
             106      completed a residency program in pediatrics;
             107          (iii) one person who is employed in the Department of Health; and
             108          (iv) two persons from the community who are familiar with autism spectrum disorders
             109      and their effects, diagnosis, treatment, rehabilitation, and support needs, including:
             110          (A) family members of a person with an autism spectrum disorder;
             111          (B) representatives of an association which advocates for persons with an autism
             112      spectrum disorder; and
             113          (C) specialists or professionals that work with persons with autism spectrum disorders.
             114          (b) Notwithstanding the requirements of Subsection (1)(a), the governor shall, at the
             115      time of appointment or reappointment, adjust the length of terms to ensure that the terms of
             116      committee members are staggered so that approximately half of the committee is appointed
             117      every year.
             118          (c) If a vacancy occurs in the committee membership for any reason, a replacement

             119      may be appointed for the unexpired term.
             120          (2) The department shall provide staff support to the committee.
             121          (3) (a) The committee shall elect a chair from the membership on an annual basis.
             122          (b) A majority of the committee constitutes a quorum at any meeting, and, if a quorum
             123      exists, the action of the majority of members present shall be the action of the committee.
             124          (c) The executive director may remove a committee member:
             125          (i) if the member is unable or unwilling to carry out the member's assigned
             126      responsibilities; or
             127          (ii) for good cause.
             128          (4) The committee may, in accordance with Title 63G, Chapter 3, Utah Administrative
             129      Rulemaking Act, make rules governing the committee's activities, which rules shall:
             130          (a) comply with the requirements of this title; and
             131          (b) include:
             132          (i) qualification criteria and procedures for selecting service and treatment providers
             133      that receive disbursements from the account, which criteria shall give additional consideration
             134      to providers that are willing to use low interest loans when providing services to individuals;
             135      and
             136          (ii) provisions to address and avoid conflicts of interest that may arise in relation to:
             137          (A) the committee's selection of providers and persons that receive referrals,
             138      disbursements, or assistance from the account; and
             139          (B) other matters that may constitute a conflict of interest.
             140          (5) The committee shall meet as necessary to carry out its duties and shall meet upon a
             141      call of the committee chair or a call of a majority of the committee members, but no more than
             142      four times per year.
             143          (6) The committee shall comply with the procedures and requirements of:
             144          (a) Title 52, Chapter 4, Open and Public Meetings Act; and
             145          (b) Title 63G, Chapter 2, Government Records Access and Management Act.
             146          (7) Committee members shall receive no compensation or per diem allowance for their
             147      services.
             148          (8) Not later than November 30 of each year, the committee shall provide a written
             149      report summarizing the activities of the committee to:

             150          (a) the executive director of the department;
             151          (b) the Health and Human Services Interim Committee; and
             152          (c) the Health and Human Services Appropriations Subcommittee.

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