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S.J.R. 12






Chief Sponsor: Mark B. Madsen

House Sponsor: Craig A. Frank

             8      LONG TITLE
             9      General Description:
             10          This joint resolution of the Legislature designates September 3 through September 9,
             11      2012, as Mitochondrial Disease Awareness Week.
             12      Highlighted Provisions:
             13          This resolution:
             14          .    designates September 3 through September 9, 2012, as Mitochondrial Disease
             15      Awareness Week in the state of Utah and urges the citizens of Utah to observe the
             16      week with appropriate activities and programs.
             17      Special Clauses:
             18          None
             20      Be it resolved by the Legislature of the state of Utah:
             21          WHEREAS, mitochondria are part of every cell in the body and contain genetic
             22      material;
             23          WHEREAS, mitochondria are responsible for processing oxygen and converting
             24      substances from foods eaten into energy needed by the body to sustain life and support growth;
             25          WHEREAS, mitochondrial disease results from failures of the mitochondria;
             26          WHEREAS, mitochondrial disease causes a wide range of health issues including
             27      seizures, low blood counts, blindness, deafness, dementia, heart failure, progressive muscle

             28      weakness, and often cause sequential failure of several oxygen systems;
             29          WHEREAS, symptoms of mitochondrial disease can appear at any age and can
             30      significantly compromise lives of affected individuals;
             31          WHEREAS, while mitochondrial disease can affect any person at any age, they
             32      primarily affect children;
             33          WHEREAS, many children with mitochondrial disease die before their teenage years;
             34          WHEREAS, though no cure exists, early diagnosis and use of proper medication and
             35      nutritional supplements can help reduce symptoms, delay or prevent the progression of the
             36      disease, improve quality of life, and even prolong life;
             37          WHEREAS, the goal of the United Mitochondrial Disease Foundation is "to promote
             38      research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to
             39      provide support to affected individuals and families"; and
             40          WHEREAS, it is appropriate that the citizens of Utah be better informed about
             41      mitochondrial diseases and their impact:
             42          NOW, THEREFORE, BE IT RESOLVED that the Legislature of the state of Utah
             43      designates September 3 through September 9, 2012, as Mitochondrial Disease Awareness
             44      Week in the state of Utah and urges the citizens of Utah to observe the week with appropriate
             45      activities and programs.
             46          BE IT FURTHER RESOLVED that a copy of this resolution be sent to the
             47      Mitochondrial Medicine Society, the United Mitochondrial Disease Foundation, the
             48      Mitochondrial Physiology Society, the Mitochondrial Research Society, the NIH Mitochondrial
             49      Interest Group, and to the Utah Department of Health.

Legislative Review Note
    as of 1-26-12 5:11 PM

Office of Legislative Research and General Counsel

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