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S.B. 47

             1     

ALZHEIMER'S DISEASE AND RELATED DEMENTIAS ACT

             2     
2012 GENERAL SESSION

             3     
STATE OF UTAH

             4     
Chief Sponsor: Karen W. Morgan

             5     
House Sponsor: ____________

             6     
             7      LONG TITLE
             8      General Description:
             9          This bill creates the Alzheimer's State Plan Advisory Council within the Division of
             10      Aging and Adult Services and describes the duties of the division in relation to
             11      Alzheimer's Disease and related dementias.
             12      Highlighted Provisions:
             13          This bill:
             14          .    defines terms;
             15          .    creates the Alzheimer's State Plan Advisory Council within the Division of Aging
             16      and Adult Services in the Department of Human Services;
             17          .    provides that non-legislative members of the advisory council are not entitled to
             18      compensation, but may receive per diem and travel expenses;
             19          .    requires the Division of Aging and Adult Services to:
             20              .    raise public awareness of Alzheimer's disease and related dementias;
             21              .    partner with law enforcement agencies and the banking sector to curb financial
             22      abuse of an individual with Alzheimer's disease or a related dementia;
             23              .    develop an endangered person advisory system; and
             24              .    create a voluntary certification program to train a person who works with an
             25      individual who suffers from Alzheimer's disease or a related dementia; and
             26          .    authorizes the Division of Aging and Adult Services to partner with a private or
             27      non-profit organization to seek private funding for activities authorized under this


             28      chapter.
             29      Money Appropriated in this Bill:
             30          This bill appropriates:
             31          .    to the Department of Human Services - Division of Aging and Adult Services, as a
             32      one-time appropriation:
             33              .    from the Alzheimer's State Plan Task Force Restricted Account, $21,800,
             34      subject to intent language that the appropriation is non-lapsing and shall be used
             35      to fund programs and services created by the Alzheimer's Disease and Related
             36      Dementia's Act.
             37      Other Special Clauses:
             38          None
             39      Utah Code Sections Affected:
             40      ENACTS:
             41          62A-3-501, Utah Code Annotated 1953
             42          62A-3-502, Utah Code Annotated 1953
             43          62A-3-503, Utah Code Annotated 1953
             44          62A-3-504, Utah Code Annotated 1953
             45          62A-3-505, Utah Code Annotated 1953
             46          62A-3-506, Utah Code Annotated 1953
             47     
             48      Be it enacted by the Legislature of the state of Utah:
             49          Section 1. Section 62A-3-501 is enacted to read:
             50     
Part 5. Alzheimer's Disease and Related Dementias Act

             51          62A-3-501. Title.
             52          This part is known as the "Alzheimer's Disease and Related Dementias Act."
             53          Section 2. Section 62A-3-502 is enacted to read:
             54          62A-3-502. Definitions.
             55          As used in this part:
             56          (1) "Advisory council" means the Alzheimer's State Plan Advisory Council, created in
             57      Section 62A-3-402 .
             58          (2) "Cognitively impaired person" means a person who, due to age or mental


             59      deficiency, suffers from:
             60          (a) long-term or short-term memory loss;
             61          (b) a reduction of deductive or abstract reasoning skills; or
             62          (c) a lack of judgment as it related to safety awareness.
             63          (3) "Department" means the Department of Human Services.
             64          (4) "Division" means the Division of Aging and Adult Services within the department.
             65          (5) "Related dementia" includes:
             66          (a) frontotemporal dementia;
             67          (b) dementia with lewy bodies;
             68          (c) vascular dementia;
             69          (d) Creutzfeldt-Jakob Disease;
             70          (e) Parkinson's disease;
             71          (f) Huntington disease; and
             72          (g) other dementia that is caused by a progressive degeneration of brain cells.
             73          (6) "State plan" means the five-year plan created by the Alzheimer's State Plan Task
             74      Force, created in S.B. 48, 2011 General Session.
             75          Section 3. Section 62A-3-503 is enacted to read:
             76          62A-3-503. Alzheimer's State Plan Advisory Council -- Creation -- Membership --
             77      Compensation -- Staff -- Private partnership to seek additional funding.
             78          (1) There is created within the division the Alzheimer's State Advisory Council,
             79      consisting of the following members:
             80          (a) each of the following, or a designee of each of the following:
             81          (i) the executive director of the department;
             82          (ii) the executive director of the Department of Health; and
             83          (iii) the director of the division;
             84          (b) a member of the House of Representatives appointed by the speaker of the House;
             85          (c) a member of the Senate appointed by the president of the Senate; and
             86          (d) the following members appointed by the director of the division:
             87          (i) an individual who has early stage Alzheimer's disease or related dementia;
             88          (ii) an individual who provides care to a family member with Alzheimer's disease or
             89      related dementia;


             90          (iii) a licensed physician with experience in the diagnoses, treatment, and research of
             91      Alzheimer's disease;
             92          (iv) a representative of the Long-term Care Ombudsman Program within the
             93      department;
             94          (v) a representative of the personal home care profession;
             95          (vi) two representatives of the long-term care profession, at least one who represents
             96      secure care for individuals with Alzheimer's disease;
             97          (vii) a representative of the insurance profession;
             98          (viii) a representative of the area agencies on aging;
             99          (ix) an individual with expertise in the provision of health services and human services
             100      to minorities;
             101          (x) a licensed attorney with experience in elder law;
             102          (xi) two representatives of one or more organizations that provide volunteer services
             103      relating to the care and support of a person with Alzheimer's disease; and
             104          (xii) any other individual the director designates as a necessary stakeholder.
             105          (2) Non-legislative members of the advisory council:
             106          (a) shall assist the division in implementing provisions of the Alzheimer's State Plan,
             107      as practicable and within existing funding, beginning on May 8, 2012 and ending May 8, 2017;
             108      and
             109          (b) may not receive compensation or benefits for the member's service, but may receive
             110      per diem and travel expenses in accordance with:
             111          (i) Section 63A-3-106 ;
             112          (ii) Section 63A-3-107 ; and
             113          (iii) rules made by the Division of Finance pursuant to Sections 63A-3-106 and
             114      63A-6-107 .
             115          (3) A legislator who is a member of the advisory council shall:
             116          (a) fulfill the duties described in Subsection (2)(a); and
             117          (b) receive salaries and expenses in accordance with Section 36-2-2 and Legislative
             118      Joint Rules, Title 5, Chapter 3, Expense and Mileage Reimbursement for Authorized
             119      Legislative Meetings, Special Sessions, and Veto Override Sessions.
             120          (4) The director of the division shall oversee the council and its work.


             121          (5) The division shall provide staff support to the advisory council.
             122          (6) The division may, in consultation with the advisory council, designate a private or
             123      nonprofit organization to seek funding in the form of private donations or grants to fund
             124      projects authorized under this part. Funds received under this Subsection (6) shall be deposited
             125      in the Alzheimer's State Plan Restricted Account.
             126          Section 4. Section 62A-3-504 is enacted to read:
             127          62A-3-504. Division duties.
             128          (1) The division shall:
             129          (a) raise public awareness of Alzheimer's disease and related dementias by:
             130          (i) partnering with the Department of Health to establish a program with health
             131      resource guides devoted to Alzheimer's disease and related dementias, as funding allows;
             132          (ii) collaborating with other state agencies to develop and disseminate culturally
             133      appropriate print, radio, and television media campaigns for awareness of Alzheimer's disease
             134      and related dementias, as funding allows;
             135          (iii) developing electronic links on the department's website to ensure that reliable
             136      information about Alzheimer's disease and related dementias is available to citizens;
             137          (iv) providing the following forms on the department's website:
             138          (A) durable power of attorney for healthcare; and
             139          (B) physician orders for life sustaining treatment; and
             140          (v) investigate options for collecting data on the incidence of Alzheimer's disease and
             141      related dementias;
             142          (b) partner with law enforcement agencies and the private banking sector to promote
             143      the recognition and curbing of potential financial abuse of an individual with Alzheimer's
             144      disease or a related dementia; and
             145          (c) explore options to develop an endangered person advisory system, in conjunction
             146      with the AMBER Alert, through a voluntary partnership with law enforcement, broadcasters,
             147      media, and community organizations in the event:
             148          (i) a law enforcement agency has confirmed that a cognitively impaired person is
             149      missing;
             150          (ii) the law enforcement agency believes the circumstances surrounding the
             151      disappearance indicate the person is in danger of serious injury or death; and


             152          (iii) there is enough descriptive information about the disappearance and the person to
             153      ensure that an immediate broadcast of the information could aid in the discovery of the person.
             154          (2) The division may seek public and private funding for projects authorized under this
             155      part and funds received shall be deposited in the Alzheimer's State Plan Restricted Account.
             156          Section 5. Section 62A-3-505 is enacted to read:
             157          62A-3-505. Voluntary Alzheimer's disease and related dementias certification
             158      program.
             159          (1) The department shall direct an organization seeking training for its staff or an
             160      individual seeking professional training in dementia care or elder care to Foundations of
             161      Dementia Care or a similar private program which provides training, testing, and certification
             162      on:
             163          (a) the basics of dementia;
             164          (b) improving communication with individuals who suffer from dementia;
             165          (c) understanding behavior of individuals with dementia, including wandering;
             166          (d) reducing the risk of falls;
             167          (e) providing restraint-free care;
             168          (f) making a connection with an individual who suffers from dementia; and
             169          (g) end-of-life care.
             170          (2) The department shall make a list of persons who have successfully completed the
             171      certification program described in Subsection (1) available on the department website.
             172          (3) Participation in the certification program described in Subsection (1) is voluntary.
             173          Section 6. Section 62A-3-506 is enacted to read:
             174          62A-3-506. Alzheimer's State Plan Restricted Account.
             175          (1) There is created a restricted account within the General Fund known as the
             176      "Alzheimer's State Plan Restricted Account."
             177          (2) The account shall be funded by donations and grants from public or private entities.
             178          (3) Funds in the account are nonlapsing.
             179          (4) The Legislature shall appropriate funds from the account to fund the operation and
             180      support of programs and services provided under this part.
             181          Section 7. Appropriation.
             182          Under the terms and conditions of Title 63J, Chapter 1, Budgetary Procedures Act, the


             183      following sums of money are appropriated from resources not otherwise appropriated or
             184      reduced from amounts previously appropriated out of the funds or accounts indicated for the
             185      fiscal year beginning July 1, 2011 and ending June 30, 2012. These are additions to any
             186      amounts previously appropriated for fiscal year 2012.
             187      To Department of Human Services - Division of Aging and Adult Services
             188          From Alzheimer's State Plan Task Force Restricted Account, one-time      $21,800
             189          Schedule of Programs:
             190              Alzheimer's State Plan Restricted Account        $21,800
             191          The Legislature intends that, under Section 63J-1-603 , the appropriations under this
             192      section not lapse at the close of fiscal year 2012 and shall be used by the Division of Aging and
             193      Adult Services to implement provisions of the Alzheimer's State Plan.




Legislative Review Note
    as of 1-26-12 5:12 PM


Office of Legislative Research and General Counsel


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