S.B. 48 Enrolled

1

ALZHEIMER'S STATE PLAN TASK FORCE
2 2011 GENERAL SESSION
3 STATE OF UTAH
4 Chief Sponsor: Karen W. Morgan
5 House Sponsor: Carol Spackman Moss
6
7 LONG TITLE
8 General Description:
9 This bill establishes an Alzheimer's State Plan Task Force within the Division of Aging
10 and Adult Services in the Department of Human Services.
11 Highlighted Provisions:
12 This bill:
13 . defines terms;
14 . creates the Alzheimer's State Plan Task Force within the Division of Aging and
15 Adult Services in the Department of Human Services;
16 . describes the membership of, and provides staff support for, the task force;
17 . provides that members of the task force are not entitled to compensation, but may
18 receive per diem and travel expenses;
19 . provides that the task force does not go into effect until at least $25,000 has been
20 deposited into the Alzheimer's State Plan Task Force Restricted Account;
21 . addresses requirements relating to a quorum, actions, and meetings of the task force;
22 . describes the duties of the task force;
23 . requires the task force to complete its duties and submit a report on its findings and
24 recommendations to the Health and Human Services Interim Committee on or
25 before its November 2011 meeting; and
26 . creates the Alzheimer's State Plan Task Force Restricted Account.
27 Money Appropriated in this Bill:
28 This bill appropriates:
29 . $2,040, as a one-time appropriation, to the House;

30 . $2,040, as a one-time appropriation, to the Senate; and
31 . $20,920, as a one-time, nonlapsing appropriation, to the Division of Aging and
32 Adult Services, subject to intent language stating that the $20,920 shall be used,
33 first for the expenses of the Alzheimer's State Plan Task Force, with the remaining
34 money to be used by the Division of Aging and Adult Services to fund respite care
35 for individuals with Alzheimer's disease or related dementia.
36 Other Special Clauses:
37 This bill is repealed on November 30, 2011.
38 Uncodified Material Affected:
39 ENACTS UNCODIFIED MATERIAL
40
41 Be it enacted by the Legislature of the state of Utah:
42 Section 1. Definitions.
43 As used in this bill:
44 (1) "Department" means the Department of Human Services.
45 (2) "Division" means the Division of Aging and Adult Services within the department.
46 (3) "Related dementia" includes:
47 (a) frontotemporal dementia;
48 (b) dementia with lewy bodies;
49 (c) vascular dementia;
50 (d) Creutzfeldt-Jakob Disease;
51 (e) Parkinson's disease;
52 (f) Huntington disease; and
53 (g) other dementia that is caused by a progressive degeneration of brain cells.
54 (4) "Task Force" means the Alzheimer's State Plan Task Force, created in Section 2 of
55 this bill.
56 Section 2. Alzheimer's State Plan Task Force -- Creation -- Membership --
57 Compensation -- Staff.

58 (1) Subject to Subsection (5), there is created, within the division, the Alzheimer's
59 State Plan Task Force, consisting of the following 20 members:
60 (a) each of the following, or a designee of each of the following:
61 (i) the lieutenant governor;
62 (ii) the executive director of the department;
63 (iii) the executive director of the Department of Health; and
64 (iv) the director of the division;
65 (b) a member of the House of Representatives, appointed by the Speaker of the House;
66 (c) a member of the Senate, appointed by the President of the Senate; and
67 (d) the following members appointed by the governor:
68 (i) an individual who has early stage Alzheimer's disease or related dementia;
69 (ii) an individual who provides care to a family member with Alzheimer's disease or
70 related dementia;
71 (iii) a licensed physician with experience in the diagnoses, treatment, and research of
72 Alzheimer's disease;
73 (iv) a representative of the Long-term Care Ombudsman Program within the
74 department;
75 (v) a representative of the personal home care profession;
76 (vi) two representatives of the long-term care profession, at least one who represents
77 secure care for individuals with Alzheimer's disease;
78 (vii) a representative of the adult day care services profession;
79 (viii) a representative of the insurance profession;
80 (ix) a representative of the area agencies on aging;
81 (x) an individual with expertise in the provision of health services and human services
82 to minorities;
83 (xi) a licensed attorney with experience in elder law; and
84 (xii) two representatives of one or more organizations that provide volunteer services
85 relating to the care and support of a person with Alzheimer's disease.

86 (2) A non-legislative member of the task force may not receive compensation or
87 benefits for the member's service, but may receive per diem and travel expenses in accordance
88 with:
89 (a) Section 63A-3-106 ;
90 (b) Section 63A-3-107 ; and
91 (c) rules made by the Division of Finance pursuant to Sections 63A-3-106 and
92 63A-3-107 .
93 (3) Salaries and expenses of a legislator who is a member of the task force shall be paid
94 in accordance with Section 36-2-2 and Legislative Joint Rules, Title 5, Chapter 3, Expense and
95 Mileage Reimbursement for Authorized Legislative Meetings, Special Sessions, and Veto
96 Override Sessions.
97 (4) The department shall provide staff support to the task force.
98 (5) This section does not go into effect until at least $25,000, in the form of donations
99 or grants, has been deposited into the Alzheimer's State Plan Task Force Restricted Account.
100 Section 3. Quorum -- Meetings.
101 (1) A majority of the members of the task force constitute a quorum.
102 (2) An action by a majority of a quorum present at a meeting constitutes action by the
103 task force.
104 (3) The task force shall hold at least six meetings including:
105 (a) an initial meeting;
106 (b) four meetings in different geographic regions of the state; and
107 (c) a concluding meeting.
108 Section 4. Duties.
109 (1) The task force shall:
110 (a) assess the current and future impact of Alzheimer's disease and related dementia on
111 residents of the state;
112 (b) determine the existing services and resources in the state that address the needs of
113 individuals with Alzheimer's disease and related dementia, and their families and caregivers;

114 and
115 (c) develop recommendations to respond to escalating needs for the services and
116 resources described in Subsection (1)(b).
117 (2) In fulfilling the duties described in Subsection (1), the task force shall examine:
118 (a) trends and needs in the state relating to populations with Alzheimer's disease or
119 related dementia, including:
120 (i) the state's role in the provision of long-term care;
121 (ii) family caregiver support;
122 (iii) the provision of early-stage diagnoses, assistance, support, and medical services;
123 (iv) younger onset of Alzheimer's disease or related dementia;
124 (v) ethnic populations at higher risk; and
125 (vi) risk reduction;
126 (b) existing services, resources, and capacity available to individuals with Alzheimer's
127 disease or related dementia, including:
128 (i) the type, cost, availability, and adequacy of services, including:
129 (A) home and community-based resources;
130 (B) respite care;
131 (C) residential long-term care; and
132 (D) geriatric-psychiatric units for individuals with associated behavioral disorders;
133 (ii) dementia-specific training requirements for individuals who are employed to
134 provide care to individuals with Alzheimer's disease or related dementia;
135 (iii) quality of care measures for services delivered across the continuum of care;
136 (iv) the capacity of public safety and law enforcement to respond to individuals with
137 Alzheimer's disease or related dementia; and
138 (v) state support to institutions of higher learning for research on Alzheimer's disease
139 or related dementia;
140 (c) the need for state policy or action in order to provide clear, coordinated services and
141 support to individuals with Alzheimer's disease or related dementia, and their families; and

142 (d) strategies to identify gaps in services.
143 Section 5. Reporting.
144 The task force shall complete its duties and submit a report on its findings and
145 recommendations to the Health and Human Services Interim Committee on or before the
146 committee's November 2011 meeting.
147 Section 6. Alzheimer's State Plan Task Force Restricted Account.
148 (1) There is created a restricted account within the General Fund known as the
149 "Alzheimer's State Plan Task Force Restricted Account."
150 (2) The account shall be funded by donations and grants from public or private entities.
151 (3) Funds in the account are nonlapsing.
152 (4) The Legislature shall appropriate funds from the account to fund the operation and
153 support of the task force, including per diem and travel expenses of non-legislative members
154 and salaries and expenses of legislative members.
155 Section 7. Appropriation.
156 Under the terms and conditions of Title 63J, Chapter 1, Budgetary Procedures Act, the
157 following sums of money are appropriated from resources not otherwise appropriated out of the
158 funds or accounts indicated for the fiscal year beginning July 1, 2010, and ending June 30,
159 2011. These appropriations are in addition to the amounts previously appropriated for fiscal
160 year 2011.

161	Item 1 To Legislature - House of Representatives
162		From Alzheimer's State Plan Task Force Restricted Account, one-time			$2,040
163		Schedule of Programs:
164			Alzheimer's State Plan Task Force	$2,040

165	Item 2 To Legislature - Senate
166		From Alzheimer's State Plan Task Force Restricted Account, one-time			$2,040
167		Schedule of Programs:
168			Alzheimer's State Plan Task Force	$2,040

169	Item 3 To Department of Human Services - Division of Aging and Adult Services
170		From Alzheimer's State Plan Task Force Restricted Account, one-time			$20,920
171		Schedule of Programs:
172			Alzheimer's State Plan Task Force	$20,920

173 Under Section 63J-1-603, the Legislature intends that the $20,920 appropriated by this
174 item shall not lapse at the close of fiscal year 2011 and shall be used, first for the expenses of
175 the Alzheimer's State Plan Task Force, with the remaining money to be used by the Division of
176 Aging and Adult Services to fund respite care for individuals with Alzheimer's disease or
177 related dementia.
178 Section 8. Repeal date.
179 This bill is repealed on November 30, 2011.