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S.B. 48 Enrolled

             1     

ALZHEIMER'S STATE PLAN TASK FORCE

             2     
2011 GENERAL SESSION

             3     
STATE OF UTAH

             4     
Chief Sponsor: Karen W. Morgan

             5     
House Sponsor: Carol Spackman Moss

             6     
             7      LONG TITLE
             8      General Description:
             9          This bill establishes an Alzheimer's State Plan Task Force within the Division of Aging
             10      and Adult Services in the Department of Human Services.
             11      Highlighted Provisions:
             12          This bill:
             13          .    defines terms;
             14          .    creates the Alzheimer's State Plan Task Force within the Division of Aging and
             15      Adult Services in the Department of Human Services;
             16          .    describes the membership of, and provides staff support for, the task force;
             17          .    provides that members of the task force are not entitled to compensation, but may
             18      receive per diem and travel expenses;
             19          .    provides that the task force does not go into effect until at least $25,000 has been
             20      deposited into the Alzheimer's State Plan Task Force Restricted Account;
             21          .    addresses requirements relating to a quorum, actions, and meetings of the task force;
             22          .    describes the duties of the task force;
             23          .    requires the task force to complete its duties and submit a report on its findings and
             24      recommendations to the Health and Human Services Interim Committee on or
             25      before its November 2011 meeting; and
             26          .    creates the Alzheimer's State Plan Task Force Restricted Account.
             27      Money Appropriated in this Bill:
             28          This bill appropriates:
             29          .    $2,040, as a one-time appropriation, to the House;


             30          .    $2,040, as a one-time appropriation, to the Senate; and
             31          .    $20,920, as a one-time, nonlapsing appropriation, to the Division of Aging and
             32      Adult Services, subject to intent language stating that the $20,920 shall be used,
             33      first for the expenses of the Alzheimer's State Plan Task Force, with the remaining
             34      money to be used by the Division of Aging and Adult Services to fund respite care
             35      for individuals with Alzheimer's disease or related dementia.
             36      Other Special Clauses:
             37          This bill is repealed on November 30, 2011.
             38      Uncodified Material Affected:
             39      ENACTS UNCODIFIED MATERIAL
             40     
             41      Be it enacted by the Legislature of the state of Utah:
             42          Section 1. Definitions.
             43          As used in this bill:
             44          (1) "Department" means the Department of Human Services.
             45          (2) "Division" means the Division of Aging and Adult Services within the department.
             46          (3) "Related dementia" includes:
             47          (a) frontotemporal dementia;
             48          (b) dementia with lewy bodies;
             49          (c) vascular dementia;
             50          (d) Creutzfeldt-Jakob Disease;
             51          (e) Parkinson's disease;
             52          (f) Huntington disease; and
             53          (g) other dementia that is caused by a progressive degeneration of brain cells.
             54          (4) "Task Force" means the Alzheimer's State Plan Task Force, created in Section 2 of
             55      this bill.
             56          Section 2. Alzheimer's State Plan Task Force -- Creation -- Membership --
             57      Compensation -- Staff.


             58          (1) Subject to Subsection (5), there is created, within the division, the Alzheimer's
             59      State Plan Task Force, consisting of the following 20 members:
             60          (a) each of the following, or a designee of each of the following:
             61          (i) the lieutenant governor;
             62          (ii) the executive director of the department;
             63          (iii) the executive director of the Department of Health; and
             64          (iv) the director of the division;
             65          (b) a member of the House of Representatives, appointed by the Speaker of the House;
             66          (c) a member of the Senate, appointed by the President of the Senate; and
             67          (d) the following members appointed by the governor:
             68          (i) an individual who has early stage Alzheimer's disease or related dementia;
             69          (ii) an individual who provides care to a family member with Alzheimer's disease or
             70      related dementia;
             71          (iii) a licensed physician with experience in the diagnoses, treatment, and research of
             72      Alzheimer's disease;
             73          (iv) a representative of the Long-term Care Ombudsman Program within the
             74      department;
             75          (v) a representative of the personal home care profession;
             76          (vi) two representatives of the long-term care profession, at least one who represents
             77      secure care for individuals with Alzheimer's disease;
             78          (vii) a representative of the adult day care services profession;
             79          (viii) a representative of the insurance profession;
             80          (ix) a representative of the area agencies on aging;
             81          (x) an individual with expertise in the provision of health services and human services
             82      to minorities;
             83          (xi) a licensed attorney with experience in elder law; and
             84          (xii) two representatives of one or more organizations that provide volunteer services
             85      relating to the care and support of a person with Alzheimer's disease.


             86          (2) A non-legislative member of the task force may not receive compensation or
             87      benefits for the member's service, but may receive per diem and travel expenses in accordance
             88      with:
             89          (a) Section 63A-3-106 ;
             90          (b) Section 63A-3-107 ; and
             91          (c) rules made by the Division of Finance pursuant to Sections 63A-3-106 and
             92      63A-3-107 .
             93          (3) Salaries and expenses of a legislator who is a member of the task force shall be paid
             94      in accordance with Section 36-2-2 and Legislative Joint Rules, Title 5, Chapter 3, Expense and
             95      Mileage Reimbursement for Authorized Legislative Meetings, Special Sessions, and Veto
             96      Override Sessions.
             97          (4) The department shall provide staff support to the task force.
             98          (5) This section does not go into effect until at least $25,000, in the form of donations
             99      or grants, has been deposited into the Alzheimer's State Plan Task Force Restricted Account.
             100          Section 3. Quorum -- Meetings.
             101          (1) A majority of the members of the task force constitute a quorum.
             102          (2) An action by a majority of a quorum present at a meeting constitutes action by the
             103      task force.
             104          (3) The task force shall hold at least six meetings including:
             105          (a) an initial meeting;
             106          (b) four meetings in different geographic regions of the state; and
             107          (c) a concluding meeting.
             108          Section 4. Duties.
             109          (1) The task force shall:
             110          (a) assess the current and future impact of Alzheimer's disease and related dementia on
             111      residents of the state;
             112          (b) determine the existing services and resources in the state that address the needs of
             113      individuals with Alzheimer's disease and related dementia, and their families and caregivers;


             114      and
             115          (c) develop recommendations to respond to escalating needs for the services and
             116      resources described in Subsection (1)(b).
             117          (2) In fulfilling the duties described in Subsection (1), the task force shall examine:
             118          (a) trends and needs in the state relating to populations with Alzheimer's disease or
             119      related dementia, including:
             120          (i) the state's role in the provision of long-term care;
             121          (ii) family caregiver support;
             122          (iii) the provision of early-stage diagnoses, assistance, support, and medical services;
             123          (iv) younger onset of Alzheimer's disease or related dementia;
             124          (v) ethnic populations at higher risk; and
             125          (vi) risk reduction;
             126          (b) existing services, resources, and capacity available to individuals with Alzheimer's
             127      disease or related dementia, including:
             128          (i) the type, cost, availability, and adequacy of services, including:
             129          (A) home and community-based resources;
             130          (B) respite care;
             131          (C) residential long-term care; and
             132          (D) geriatric-psychiatric units for individuals with associated behavioral disorders;
             133          (ii) dementia-specific training requirements for individuals who are employed to
             134      provide care to individuals with Alzheimer's disease or related dementia;
             135          (iii) quality of care measures for services delivered across the continuum of care;
             136          (iv) the capacity of public safety and law enforcement to respond to individuals with
             137      Alzheimer's disease or related dementia; and
             138          (v) state support to institutions of higher learning for research on Alzheimer's disease
             139      or related dementia;
             140          (c) the need for state policy or action in order to provide clear, coordinated services and
             141      support to individuals with Alzheimer's disease or related dementia, and their families; and


             142          (d) strategies to identify gaps in services.
             143          Section 5. Reporting.
             144          The task force shall complete its duties and submit a report on its findings and
             145      recommendations to the Health and Human Services Interim Committee on or before the
             146      committee's November 2011 meeting.
             147          Section 6. Alzheimer's State Plan Task Force Restricted Account.
             148          (1) There is created a restricted account within the General Fund known as the
             149      "Alzheimer's State Plan Task Force Restricted Account."
             150          (2) The account shall be funded by donations and grants from public or private entities.
             151          (3) Funds in the account are nonlapsing.
             152          (4) The Legislature shall appropriate funds from the account to fund the operation and
             153      support of the task force, including per diem and travel expenses of non-legislative members
             154      and salaries and expenses of legislative members.
             155          Section 7. Appropriation.
             156          Under the terms and conditions of Title 63J, Chapter 1, Budgetary Procedures Act, the
             157      following sums of money are appropriated from resources not otherwise appropriated out of the
             158      funds or accounts indicated for the fiscal year beginning July 1, 2010, and ending June 30,
             159      2011. These appropriations are in addition to the amounts previously appropriated for fiscal
             160      year 2011.
             161      Item 1    To Legislature - House of Representatives
             162      From Alzheimer's State Plan Task Force Restricted Account, one-time $2,040
             163      Schedule of Programs:
             164      Alzheimer's State Plan Task Force $2,040
             165      Item 2    To Legislature - Senate
             166      From Alzheimer's State Plan Task Force Restricted Account, one-time $2,040
             167      Schedule of Programs:
             168      Alzheimer's State Plan Task Force $2,040
             169      Item 3    To Department of Human Services - Division of Aging and Adult Services
             170      From Alzheimer's State Plan Task Force Restricted Account, one-time $20,920
             171      Schedule of Programs:
             172      Alzheimer's State Plan Task Force $20,920
             173          Under Section 63J-1-603, the Legislature intends that the $20,920 appropriated by this
             174      item shall not lapse at the close of fiscal year 2011 and shall be used, first for the expenses of
             175      the Alzheimer's State Plan Task Force, with the remaining money to be used by the Division of
             176      Aging and Adult Services to fund respite care for individuals with Alzheimer's disease or
             177      related dementia.
             178          Section 8. Repeal date.
             179          This bill is repealed on November 30, 2011.


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