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S.B. 48

             1     

ALZHEIMER'S STATE PLAN TASK FORCE

             2     
2011 GENERAL SESSION

             3     
STATE OF UTAH

             4     
Chief Sponsor: Karen W. Morgan

             5     
House Sponsor: Carol Spackman Moss

             6     
             7      LONG TITLE
             8      General Description:
             9          This bill establishes an Alzheimer's State Plan Task Force within the Division of Aging
             10      and Adult Services in the Department of Human Services.
             11      Highlighted Provisions:
             12          This bill:
             13          .    defines terms;
             14          .    creates the Alzheimer's State Plan Task Force within the Division of Aging and
             15      Adult Services in the Department of Human Services;
             16          .    describes the membership of, and provides staff support for, the task force;
             17          .    provides that members of the task force are not entitled to compensation, but may
             18      receive per diem and travel expenses;
             19          .    provides that the task force does not go into effect until at least $25,000 has been
             20      deposited into the Alzheimer's State Plan Task Force Restricted Account;
             21          .    addresses requirements relating to a quorum, actions, and meetings of the task force;
             22          .    describes the duties of the task force;
             23          .    requires the task force to complete its duties and submit a report on its findings and
             24      recommendations to the Health and Human Services Interim Committee on or
             25      before its November 2011 meeting; and
             26          .    creates the Alzheimer's State Plan Task Force Restricted Account.
             27      Money Appropriated in this Bill:


             28          This bill appropriates:
             29          .    $2,040, as a one-time, nonlapsing appropriation, to the House;
             30          .    $2,040, as a one-time, nonlapsing appropriation, to the Senate; and
             31          .    $20,920, as a one-time, nonlapsing appropriation, to the Division of Aging and
             32      Adult Services.
             33      Other Special Clauses:
             34          This bill is repealed on November 30, 2011.
             35      Uncodified Material Affected:
             36      ENACTS UNCODIFIED MATERIAL
             37     
             38      Be it enacted by the Legislature of the state of Utah:
             39          Section 1. Definitions.
             40          As used in this bill:
             41          (1) "Department" means the Department of Human Services.
             42          (2) "Division" means the Division of Aging and Adult Services within the department.
             43          (3) "Related dementia" includes:
             44          (a) frontotemporal dementia;
             45          (b) dementia with lewy bodies;
             46          (c) vascular dementia;
             47          (d) Creutzfeldt-Jakob Disease;
             48          (e) Parkinson's disease;
             49          (f) Huntington disease; and
             50          (g) other dementia that is caused by a progressive degeneration of brain cells.
             51          (4) "Task Force" means the Alzheimer's State Plan Task Force, created in Section 2 of
             52      this bill.
             53          Section 2. Alzheimer's State Plan Task Force -- Creation -- Membership --
             54      Compensation -- Staff.
             55          (1) Subject to Subsection (5), there is created, within the division, the Alzheimer's
             56      State Plan Task Force, consisting of the following 20 members:
             57          (a) each of the following, or a designee of each of the following:
             58          (i) the lieutenant governor;


             59          (ii) the executive director of the department;
             60          (iii) the executive director of the Department of Health; and
             61          (iv) the director of the division;
             62          (b) a member of the House of Representatives, appointed by the Speaker of the House;
             63          (c) a member of the Senate, appointed by the President of the Senate; and
             64          (d) the following members appointed by the governor:
             65          (i) an individual who has early stage Alzheimer's disease or related dementia;
             66          (ii) an individual who provides care to a family member with Alzheimer's disease or
             67      related dementia;
             68          (iii) a licensed physician with experience in the diagnoses, treatment, and research of
             69      Alzheimer's disease;
             70          (iv) a representative of the Long-term Care Ombudsman Program within the
             71      department;
             72          (v) a representative of the personal home care profession;
             73          (vi) two representatives of the long-term care profession, at least one who represents
             74      secure care for individual's with Alzheimer's disease;
             75          (vii) a representative of the adult day care services profession;
             76          (viii) a representative of the insurance profession;
             77          (ix) a representative of the area agencies on aging;
             78          (x) an individual with expertise in the provision of health services and human services
             79      to minorities;
             80          (xi) a licensed attorney with experience in elder law; and
             81          (xii) two representatives of one or more organizations that provide volunteer services
             82      relating to the care and support of a person with Alzheimer's disease, with priority being given
             83      to an organization that donates more than $20,000 to the Alzheimer's State Plan Task Force
             84      Restricted Account.
             85          (2) A non-legislative member of the task force may not receive compensation or
             86      benefits for the member's service, but may receive per diem and travel expenses in accordance
             87      with:
             88          (a) Section 63A-3-106 ;
             89          (b) Section 63A-3-107 ; and


             90          (c) rules made by the Division of Finance pursuant to Sections 63A-3-106 and
             91      63A-3-107 .
             92          (3) Salaries and expenses of a legislator who is a member of the task force shall be paid
             93      in accordance with Section 36-2-2 and Legislative Joint Rules, Title 5, Chapter 3, Expense and
             94      Mileage Reimbursement for Authorized Legislative Meetings, Special Sessions, and Veto
             95      Override Sessions.
             96          (4) The department shall provide staff support to the task force.
             97          (5) This section does not go into effect until at least $25,000, in the form of donations
             98      or grants, has been deposited into the Alzheimer's State Plan Task Force Restricted Account.
             99          Section 3. Quorum -- Meetings.
             100          (1) A majority of the members of the task force constitute a quorum.
             101          (2) An action by a majority of a quorum present at a meeting constitutes action by the
             102      task force.
             103          (3) The task force shall hold at least six meetings including:
             104          (a) an initial meeting;
             105          (b) four meetings in different geographic regions of the state; and
             106          (c) a concluding meeting.
             107          Section 4. Duties.
             108          (1) The task force shall:
             109          (a) assess the current and future impact of Alzheimer's disease and related dementia on
             110      residents of the state;
             111          (b) determine the existing services and resources in the state that address the needs of
             112      individuals with Alzheimer's disease and related dementia, and their families and caregivers;
             113      and
             114          (c) develop recommendations to respond to escalating needs for the services and
             115      resources described in Subsection (1)(b).
             116          (2) In fulfilling the duties described in Subsection (1), the task force shall examine:
             117          (a) trends and needs in the state relating to populations with Alzheimer's disease or
             118      related dementia, including:
             119          (i) the state's role in the provision of long-term care;
             120          (ii) family caregiver support;


             121          (iii) the provision of early-stage diagnoses, assistance, support, and medical services;
             122          (iv) younger onset of Alzheimer's disease or related dementia;
             123          (v) ethnic populations at higher risk; and
             124          (vi) risk reduction;
             125          (b) existing services, resources, and capacity available to individuals with Alzheimer's
             126      disease or related dementia, including:
             127          (i) the type, cost, availability, and adequacy of services, including:
             128          (A) home and community-based resources;
             129          (B) respite care;
             130          (C) residential long-term care; and
             131          (D) geriatric-psychiatric units for individuals with associated behavioral disorders;
             132          (ii) dementia-specific training requirements for individuals who are employed to
             133      provide care to individuals with Alzheimer's disease or related dementia;
             134          (iii) quality of care measures for services delivered across the continuum of care;
             135          (iv) the capacity of public safety and law enforcement to respond to individuals with
             136      Alzheimer's disease or related dementia; and
             137          (v) state support to institutions of higher learning for research on Alzheimer's disease
             138      or related dementia;
             139          (c) the need for state policy or action in order to provide clear, coordinated services and
             140      support to individuals with Alzheimer's disease or related dementia, and their families; and
             141          (d) strategies to identify gaps in services.
             142          Section 5. Reporting.
             143          The task force shall complete its duties and submit a report on its findings and
             144      recommendations to the Health and Human Services Interim Committee on or before the
             145      committee's November 2011 meeting.
             146          Section 6. Alzheimer's State Plan Task Force Restricted Account.
             147          (1) There is created a restricted account within the General Fund known as the
             148      "Alzheimer's State Plan Task Force Restricted Account."
             149          (2) The account shall be funded by donations and grants from public or private entities.
             150          (3) Funds in the account are nonlapsing.
             151          (4) The Legislature shall appropriate funds from the account to fund the operation and


             152      support of the task force, including per diem and travel expenses of non-legislative members
             153      and salaries and expenses of legislative members.
             154          (5) Funds left in the account after paying the obligations under Subsection (4) shall be
             155      used by the department to fund respite care for individuals with Alzheimer's disease or related
             156      dementia.
             157          Section 7. Appropriation.
             158          Under the terms and conditions of Title 63J, Chapter 1, Budgetary Procedures Act, the
             159      following sums of money are appropriated from the funds or accounts indicated for the fiscal
             160      year beginning July 1, 2010, and ending June 30, 2011. These appropriations are in addition to
             161      the amounts previously appropriated for fiscal year 2011.
             162      Item 1    To Legislature - House of Representatives
             163      From Alzheimer's State Plan Task Force Restricted Account $2,040
             164      Schedule of Programs:
             165      Alzheimer's State Plan Task force $2,040
             166          Under Section 63J-1-603, the Legislature intends that the $2,040 appropriated by this
             167      item shall not lapse at the close of fiscal year 2011.
             168      Item 2    To Legislature - Senate
             169      From Alzheimer's State Plan Task Force Restricted Account $2,040
             170      Schedule of Programs:
             171      Alzheimer's State Plan Task force $2,040
             172          Under Section 63J-1-603, the Legislature intends that the $2,040 appropriated by this
             173      item shall not lapse at the close of fiscal year 2011.
             174      Item 3    To Department of Human Services - Division of Aging and Adult Services
             175      From Alzheimer's State Plan Task Force Restricted Account $20,920
             176      Schedule of Programs:
             177      Alzheimer's State Plan Task force $20,920
             178          Under Section 63J-1-603, the Legislature intends that the $20,920 appropriated by this
             179      item shall not lapse at the close of fiscal year 2011.
             180          Section 8. Repeal date.


             181          This bill is repealed on November 30, 2011.




Legislative Review Note
    as of 1-26-11 10:26 AM


Office of Legislative Research and General Counsel


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